SERVICES
  • Ambulance/Air Transport Ambulance, Helicopter, Fixed Wing Ambulance/Air Transport
  • Fire Fire Departments/Districts, Search & Rescue Fire
  • Law Enforcement Police, Sheriffs, Security Law Enforcement
  • Hospitals/Outpatient Hospitals, Urgent Care Facilities,Outpatient Services Hospitals/Urgent Care
  • Physicians Names, office phone, hospital affiliations Physicians
  • Nursing Care Nursing Homes & Rehabilitation, Home Care Agencies, Hospice Facilities Nursing Care
  • Local/State/National Resources Government, Non-government, Commercial Local/State/National Resources
  • Emergency Shelters Schools, colleges, other public and private buildings and facilities Emergency Shelters

By listing and maintaining current contact information, these types of organizations can help save lives.

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Cancer-related Resource Organizations

Type Organization Address 1 Address 2 City State Zipcode Phone Website
                 
Blood Leukemia & Lymphoma Society 3 International Dr Suite 200 Rye Brook NY 10573 888-557-7177 https://www.lls.org
Bone-related Bone & Cancer Foundation PO Box 287452   New York NY 10128   http://www.boneandcancerfoundation.org 
Bone-related Bone Marrow  & Cancer Foundation 515 Madison Ave Suite 1130 New York NY 10022 212-838-3029 http://bonemarrow.org
Brain American Brain Tumor Association 8550 W. Bryn Mawr Ave Suite 550 Chicago IL 60631 773-577-8750 https://www.abta.org 
Brain Children's Brain Tumor Foundation 1460 Broadway   New York NY 10036 866-228-4673 http://cbtf.org/
Breast American Breast Cancer Foundation 10400 Little Pauxent Pkwy Suite 480 Columbia MD 21044 410-730-5105 www.abcf.org
Colo-Rectal Colorectal Cancer Alliance 1025 Vermont Ave NE Suite 1066 Washington  DC 20005 202-628-0123 https://www.ccalliance.org
Gene Research Victory Over Cancer/BRCA Foundation 14600 Weston Pkwy PO Box 410806 San Francisco CA 94141 415-684-7441 http://www.brcafoundation.org
General American Cancer Society  - Buffalo 101 John James Audobon Pkwy   Buffalo NY 14228 800-227-2345 https://www.facebook.com/ACSWNY/
General American Cancer Society  - East Syracuse 6725 Lyons St   East Syracuse NY 13057 315-437-7025 https://www.facebook.com/pages/American-Cancer-Society/205262772842983
General American Cancer Society  - National 250 Williams St NW   Atlanta GA 30303 800-227-2345 https://www.cancer.org
General American Cancer Society  - Rochester 1120 South Goodman St   Rochester NY 14620 585-288-1950 https://www.facebook.com/RochesterACS/
General Cancer Care 275 Seventh Ave   New York NY 10001 800-813-4673 https://www.cancercare.org
General Cancer Hope Network 2 North Rd Suite A Chester NJ 07930 908-879-4039 https://www.cancerhopenetwork.org 
General Cancer Research Institute 29 Broadway Floor 4   New York NY 10006 212-688-7515 https://www.cancerresearch.org
General Cancer Support Community  734 15th St NW Suite 300  Washington  DC 20005 202-659-9709 https://www.cancersupportcommunity.org
General Gilda's Club of Rochester 255 Alexander St   Rochester NY 14607 585-423-9700 www.gildasclubrochester.org
General National Cancer Institute 9609 Medical Center Dr   Bethesda MD 20892 301-496-4345 https://www.cancer.gov
General National Foundation for Cancer Research 5515 Security Lane Suite 1105 Rockeville MD 20852 800-321-2873 https://www.nfcr.org/
General Prevent Cancer Foundation 1600 Duke St Suite 500 Alexandria VA 22314 703-836-4412 https://preventcancer.org
Kidney/Urinary Bladder Cancer Advocacy Network 4915 St Elmo Ave Suite 202 Bethesda MD 20814 301-215-9099 https://www.bcan.org 
Kidney/Urinary Kidney Cancer Association 1608 S. Ashland Ave   Chicago IL 60608 800-850-9132 https://www.kidneycancer.org/
Lung Lung Cancer Foundation of America 15 S. Franklin St   New Ulm MN 56073 507-354-1361 https://lcfamerica.org
Pancreas Lustgarten Foundation Pancreatic Cancer Research 415 Crossways Park Dr Suite D Woodbury NY 11797 516-737-1550 https://www.lustgarten.org
Pediatric National Pediatric Cancer Foundation 5550 W. Executive Dr Suite 300  Tampa FL 33069 813-269-0955 https://nationalpcf.org/
Prostate Prostate Cancer Foundation 1250 Fourth St   Santa Monica CA 90401 310-570-4700 https://www.pcf.org
Skin Aim at Melanoma 5729 Lebanon Rd Suite 144-305 Frisco TX 75034 415-464-7727 https://www.aimatmelanoma.org
Skin Melanoma Research Foundation 1420 K St. NW 7th Floor Washington  DC 20005 202-347-9675 https://melanoma.org/
Skin Skin Cancer Foundation 205 Lexington Ave 11th floor New York NY 10016 212-725-5176 https://www.skincancer.org
Thyroid American Thyroid Association 6066 Leesburg Pike Suite 550 Falls Church  VA 22041 703-998-8890 https://www.thyroid.org/
Treatment CenterWilmot Cancer Center Lipson Cancer Center 100 Kings Highway South   Rochester NY 14617 585-922-4000 https://www.rochesterregional.org/services/cancer
Treatment CenterWilmot Cancer Center Pluta Cancer Center 125 Red Creek Dr   Rochester NY 14623 585-486-0600 https://www.urmc.rochester.edu/cancer-institute/locations/pluta.aspx
Treatment CenterWilmot Cancer Center Roswell Park Cancer Center Elm & Carlton St   Buffalo NY 14263 800-767-9355 https://www.roswellpark.org/
Treatment CenterWilmot Cancer Center 601 Elmwood Ave   Rochester NY 14642 585-275-5830 https://www.urmc.rochester.edu/cancer-institute.aspx
Variable Types Lynch Syndrome International PO Box 19   Madison  CT     https://lynchcancers.com
Variable Types Meso Foundation (Mesothelioma) 1615 L Street NW Suite 430 Washington  DC 20036 877-363-6376 https://www.curemeso.org/
Variable Types Sarcoma Foundation of America PO Box 98160   Washington  DC 20090 301-253-8687 https://www.curesarcoma.org

Congenital/Genetic-related Resource Organizations

Autism Asperger/Autism Network 51 Water St Suite 206 Watertown MA 02472 617-393-3824 http://www.aane.org
Autism Golisano Autism Center Rochester 50 Science Parkway   Rochester NY 14620 866-288-4764 https://www.golisanoautismcenter.org
Brain Carter Center for Brain Research (Holoprosencephaly) 2222 Welborn St   Dallas TX 75219 214-559-8411 http://www.hperesearch.org
Cerebral Palsy CP Rochester 3399 Winton Rd South   Rochester NY 14623 585-334-6000 http://www.cprochester.org
Cleft Palate Center for Cleft and Craniofacial Anomalies - Golisano Box 661   Rochester NY 14610 585-275-1000 https://www.urmc.rochester.edu/childrens-hospital/craniofacial.aspx
Cleft Palate Smile Train 633 Third Ave 9th Floor New York NY 10017 800-932-9541 https://www.smiletrain.org/
Connective Tissue National Marfan Foundation 22 Manhasset Ave   Port Washington NY 11050 516-883-8712 https://www.marfan.org
Craniofacial American Cleft Palate Association1504 East Franklin St   Suite 102 Chapel Hill NC 24514 919-933-9044 https://cleftline.org
Craniofacial Children's Craniofacial Association 13140 Coit Rd Suite 517 Dallas  TX 75240 800-535-3643 https://ccakids.org/
Developmental Developmental Disabilities Alliance of Western NY 1860 Buffalo Rd   Rochester NY 14624 716-877-7007 http://www.ddawny.org/
Developmental National Fragile X Foundation 1861 International Dr Suite 200 McLean VA 22102 800-688-8765 https://fragilex.org
Developmental NYS Developmental Disabilities - Finger Lakes 620 Westfall Rd   Rochester NY 14620 585-461-8500  
Developmental NYS Developmental Disabilities - Finger Lakes 163 Sullivan St  Building 5 Elmira NY 14901 607-732-9270 http://chemung.ny.networkofcare.org/mh/services/agency.aspx?pid=FingerLakesDevelopmentalDisabilitiesServiceOfficeDDSO_207_2_0
Developmental NYS Office for People with Developmental Disabilities 44 Holland Ave   Albany NY 12229 866-946-9733 https://opwdd.ny.gov
Developmental NYS Office for People with Developmental Disabilities - Region 1           585-461-8500 https://opwdd.ny.gov/opwdd_contacts/ddsoo/1
Developmental NYS OPWDD Front Door Access - Finger Lakes           855-679-3335 https://opwdd.ny.gov/welcome-front-door/Front_Door_Contact_Numbers
Developmental Parent to Parent Of NYS  500 Balltown Rd   Schnectady NY 12304 518-381-4350 http://parenttoparentnys.org/
Developmental Parent to Parent Of NYS - Finger Lakes 620 Westfall Rd c/o Finger Lakes DDSO Rochester NY 14620 800-305-8817 http://parenttoparentnys.org/index.php/offices/finger-lakes/
Down Syndrome Down Syndrome Info Network of the Twin Tiers 300 Scenic View   Horseheads NY 14845 607-734-6151 http://www.downsyndromeintt.org/
Down Syndrome Flower City Down Syndrome Network 2117 Buffalo Rd #132 Rochester NY 14624 585-568-7421 http://www.fcdsn.com/
Down Syndrome National Down Syndrome Society 8 E 41st St 8th floor New York NY 10017 800-221-4602 https://www.ndss.org
Epilepsy Epilepsy-Pralid 2 Townline Circle   Rochester NY 14623 585-442-6420 https://www.epiny.org
General Al Sigl Community of Agencies 1000 Elmwood Ave Suite 300 Rochester NY 14620 585-442-4100 https://www.alsigl.org
General Genetic Alliance 4301 Connecticut Ave NW Suite 404 Washington DC 20008 202-966-5557 http://www.geneticalliance.org
General Mary Cariola Children's Center 1000 Elmwood Ave Suite 100 Rochester NY 14620 585-271-0761 https://www.marycariola.org/
General National Newborn Screening & Genetics Resource Center 3907 Galacia Dr   Austin TX 78759 512-345-5685 http://genes-r-us.uthscsa.edu/
General Prime Care Coordination 860 Hard Rd   Webster NY 14580 844-347-3168 https://primecareny.org/
General Rochester Rehabilitation Center 1000 Elmwood Ave   Rochester NY 14620 585-271-2520 https://www.rochesterrehab.org
General Starbridge NYS Parent Training & Information Center 1650 South Ave Suite 200 Rochester NY  14620 585-546-1700 http://www.starbridgeinc.org
Genetic  Cystinosis Research Foundation 19200 Von Karman Ave Suite 920 Irvine CA 92612 949-233-7610 https://www.cystinosisresearch.org/
Genetic - Blood Fanconi Anemia Research Fund 1801 Williamette  St Suite 200 Eugene OR 97401 888-326-2664 https://www.fanconi.org
Genetic - Blood Sickle Cell Disease Association of America 7240 Parkway Dr Suite 180 Hanover MD 21076 800-421-8453 https://www.sicklecelldisease.org 
Genetic - Cancer Lynch Syndrome International PO Box 19   Madison  CT     https://lynchcancers.com
Genetic Disease Williams Syndrome Association 570 Kirts Blvd Suite 223 Troy MI 48084 248-244-2229 https://williams-syndrome.org
Genetic Disorder Dysautonomia Foundation  315 W 39th St Suite 701 New York NY 10018 212-279-1066 https://familialdysautonomia.org
Genetic DIsorder Progeria Research Foundation PO Box 3453 200 Lake St Unit 102 Peabody MA 01961 978-535-2594 https://www.progeriaresearch.org
Genetic Disorder Shwachman-Diamond Syndrome Foundation  PO Box 6723   Florence KY 41022 888-825-7373 http://shwachman-diamond.org/
Growth Disorders Human Growth Foundation 997 Glencove Ave Suite 5  Glencove NY 11545 800-451-6434 http://hgfound.org
Growth Disorders Little People of America 617 Broadway #518   Sonoma CA 95476 714-368-3689 https://www.lpaonline.org
Hearing/Speech Rochester Hearing & Speech Center - Brighton 1000 Elmwood Ave Suite 400 Rochester NY 14620 585-271-0680 https://www.rhsc.org/home
Hearing/Speech Rochester Hearing & Speech Center - Greece 3199 West Ridge Rd   Rochester NY 14626 585-723-2140 https://www.rhsc.org/home
Hearing/Speech Rochester Hearing & Speech Center - Webster 1170 Ridge Rd   Webster NY 14580 585-286-9373 https://www.rhsc.org/home
Heart Children's Heart Association  5 Revere Dr Suite 200 Lincolnshire IL 60069 847-634-6474 https://www.childrensheartfoundation.org/
Heart Pediatric Congenital Heart Association 14 Ellis Potter Court Suite 100 Madison  WI 53711 608-370-3739 https://www.conqueringchd.org/
Heart Pediatric Congenital Heart Association 14 Ellis Potter Court Suite 100 Madison  WI 63711 608-370-3739 http://conqueringchd.org/
Kidney Disorders Alport Syndrome Foundation PO Box 4130   Scottsdale AZ 85261 480-800-3510 https://www.alportsyndrome.org
Kidney Disorders Polycystic Kidney Research Foundation 1001 E 101st Terrace Suite 220 Kansas City MO 64131 800-753-2873 https://pkdcure.org
Metabolic National Gaucher Foundation 5410 Edson Lane  #220 Rockville  MD 20852 800-504-3189 https://www.gaucherdisease.org
Metabolic National Niemann-Pick Disease Foundation PO Box 49   Fort Atkinson WI 53538 877-287-3672 https://nnpdf.org
Metabolic Turner Syndrome Foundation 1 Bethany Rd Bldg 1, Suite 6 Hazlet NJ 07730 800-594-4585 https://turnersyndromefoundation.org
Metabolic United Mitochondria Disease Foundation 8085 Saltsburg Rd Suite 201 Pittsburgh PA 15239 412-793-8077 https://www.umdf.org
Metabolic Disorder Prader-Willi Syndrome Association 8588 Potter Park Dr Suite 500 Sarasota FL 34238 800-926-4797 https://www.pwsausa.org
Metabolic Disorders Maple Syrup Urine Disease 9517 Big Bear Ave   Powell  OH 43065 740-972-5619 https://www.msud-support.org
Musculoskeletal Disorders Osteogenesis Imperfecta Foundation 804 W. Diamond Ave Suite 210 Gaithersburg MD 20878 301-947-0083 www.oif.org
Neuromuscular Disorders Huntington's Disease Society of America 505 Eighth Ave Suite 902 New York NY 10018 212-242-1968 https://hdsa.org
Neuromuscular Disorders Joubert Syndrome Foundation & Related Disorders 9 Dorenfeld Court   Petaluma CT 94952 707-992-5293 https://jsrdf.org
Neuromuscular Disorders Multiple Sclerosis Society - National           800-344-4867 https://www.nationalmssociety.org/
Neuromuscular Disorders Multiple Sclerosis Society - Upstate NY 1000 Elmwood Ave Suite 900 Rochester NY 14620 585-271-0801 https://www.nationalmssociety.org/Chapters/NYR
Neuromuscular Disorders Muscular Dystrophy Association - Buffalo UBMD Conventus Bldg 1001 Main St Buffalo NY 14203 716-932-6080 https://www.mda.org/clinic/university-buffalo
Neuromuscular Disorders Muscular Dystrophy Association - National 161 N. Clark  Suite 3550 Chicago IL 60601 800-572-1717 https://www.mda.org/
Neuromuscular Disorders Muscular Dystrophy Association - Rochester University of Rochester MDA Clinic 601 Elmwood Ave Rochester NY 14642 585-275-2559 https://www.urmc.rochester.edu/neurology/our-divisions/neuromuscular/clinics/mdaclinic.aspx
Neuromuscular Disorders National Ataxia Foundation 600 Hwy 169 South Suite 1725 Minneapolis MN 55426 763-553-0020 http://ataxia.org
Neuromuscular Disorders SMA Foundation 126 East 56th St 30th Floor New York NY 10022 646-253-7100 http://www.smafoundation.org
Neuromuscular Disorders Spina Bifida Association 1600 Wilson Blvd   Arlington VA 22209 800-621-3141 http://spinabifidaassociation.org
Skin Disorder Dystrophic Epidermolysis Bullosa Research Association 75 Broad St Suite 300 New York NY 10004 212-868-1573 http://www.debra.org
Skin Disorder Foundation for Ichthyosis & Related Skin Types 2616 North Broad St   Colmar PA 18915 215-997-9400 http://www.firstskinfoundation.org
Skin Disorder Incontentia Pigmenti International Foundation 30 East 72nd St 16th floor New York NY 10021 212-452-1231 http://www.ipif.org/index.html
Spina Bifida Spina Bifida Association 1600 Wilson Blvd Suite 800 Arlington VA 22209 800-621-3141 https://www.spinabifidaassociation.org/
Variable Types Association for X and Y Chromosome Variations PO Box 659   Paoli PA 19301 888-999-9428 https://genetic.org/
Variable Types Birth Defect Research for Children 976 Lake Baldwin Lane   Orlando FL 32814 407-895-0802 http://www.birthdefects.org
Variable Types Complex Care Center 905 Culver Rd   Rochester NY 14609 585-276-7900 https://www.urmc.rochester.edu/primary-care/practices/complex-care-center.aspx
Variable Types Genetic & Rare Diseases Information Center PO Box 8126   Gaithersburg MD 20898 888-205-2311 https://rarediseases.info.nih.gov/
Variable Types Hereditary Disease Foundation 601 W 168th St Suite 54 New York NY 10032 212-928-2121 http://www.hdfoundation.org

Dental- related Resource Organizations

General American Dental Association 211 East Chicago Ave   Chicago IL 60611 312-440-2500 https://www.ada.org
General American Dental Foundation 211 East Chicago Ave   Chicago IL 60611 312-440-2500 https://www.adafoundation.org
General Eastman Institute for Oral Health 625 Elmwood Ave   Rochester NY 14620 585-275-5051 https://www.urmc.rochester.edu/dentistry.aspx
General NYD Dental Association 20 Corporate Woods Blvd Suite 602 Albany NY 12211 518-465*0044 www.nysdental.org
General Seventh District Dental Society 255 Woodcliff Dr   Fairport NY 14450 585-385-9550 www.7dds.org

Diabetes/Endocrine-related Resource Organizations

Adrenal National Adrenal Diseases Foundation PO Box 566   Lake Zurich IL 60047 847-726-9010 https://www.nadf.us
Diabetes American Diabetes Association 2451 Crystal Dr Suite 900 Arlington VA 22202 800-342-2383 http://www.diabetes.org
Diabetes American Diabetes Association - Rochester 160 Allen Creek Rd Building 160 Rochester NY 14618 585-458-3040 http://www.diabetes.org
Diabetes Juvenile Diabetes Research Foundation 26 Broadway  14th floor New York NY 10004 800-533-2873 https://www.jdrf.org
Diabetes Juvenile Diabetes Research Foundation - Rochester 6320 Fly Rd Suite 104 E. Syracuse NY 13057 315-453-9327 https://www.jdrf.org/cnyroc/
Endocrine - Variable Endocrine Society 2055 L Street NW Suite 600 Washington DC 20036 888-363-6274 https://www.endocrine.org
Endocrine - Variable Hormone Health Network (Endocrine Society) 2055 L Street NW Suite 600 Washington DC 20036 800- 467-6663 https://www.hormone.org
Growth Disorders Human Growth Foundation 997 Glencove Ave Suite 5  Glencove NY 11545 800-451-6434 http://hgfound.org
Pituitary Pituitary Foundation 86 Colston St   Bristol  United Kingdom BS1 5BB 0-117-370-1333 https://www.pituitary.org.uk
Pituitary Pituitary Society 8700 Beverly Blvd Room 2051 Los Angeles CA 90048 310-988-9486 https://www.pituitarysociety.org
Thyroid American Thyroid Association 6066 Leesburg Pike Suite 550 Falls Church VA 22041 703-998-8890 https://www.thyroid.org

Neurologic-related Resource Organizations

ALS ALS Association 1275 K Street NW Suite 250 Washington DC 20005 202-407-8580 http://www.alsa.org
Alzheimer Alzheimer Foundation of America 322 Eighth Ave 16th Floor New York NY 10001 866-232-8484 https://alzfdn.org/
Alzheimer Alzheimer's Association 225 N. Michagan Ave Floor 17 Chicago IL 60601 800-272-3900 https://www.alz.org
Alzheimer Alzheimer's Association - Rochester 435 E.HeRdnrietta    Rochester NY 14620 585-760-5400 https://www.alz.org/rochesterny?set=1
Dementia Association for Fronterotemporal Degeneration 290 King of Prussia Rd Radnor Station Bldg 2 Suite 320 Radnor  PA 19087 866-507-7222 https://www.theaftd.org/
Dementia Dementia Society of America PO Box 600   Doylestown PA 18901 800-336-3684  https://www.dementiasociety.org
Dementia Lewy Body Dementia Association 912 Killian Hill Rd SW   Lilburn GA 30047 404-935-6444 https://www.lbda.org/
Epilepsy Epilepsy-Pralid 2 Townline Circle   Rochester NY 14623 585-442-6420 https://www.epiny.org
Epilepsy  Epilepsy Foundation 8301 Professional Place West Suite 230 Landover MD 20785 800-332-1000  https://www.epilepsy.com/
General American Brain Foundation 201 Chicago Ave   Minneapolis MN 55415 866-770-7570 https://www.americanbrainfoundation.org
General American Neurological Association 1120 Route 73 Suite 200 Mount Laurel NJ 08054 856-638-0423 https://myana.org
General Brain Research Foundation 111 West Washington St Suite 1460 Chicago IL 60602 312-759-5150 https://www.thebrf.org
General Dana Foundation 505 Fifth Ave 6th Floor New York NY 10017 212-223-4040 http://dana.org
General Foundation for Neurologic Diseases 10 State St   Newburyport MA 01950 978-465-0008 http://www.fndboston.org
General Institute for Neurodegenerative Disorders 60 Temple St 8th Floor New Haven CT 06510 203-401-4300 https://www.indd.org/resources.htm
General National Institute of Neurological Disorders & Stroke 6001 Executive Blvd PO Box 5801 Rockville MD 20852 800-352-9424 www.ninds.nih.gov
Huntington's Disease Huntington's Disease Society of America 505 Eighth Ave Suite 902 New York NY 10018 800-345-4372 https://hdsa.org/
Multiple Sclerosis Multiple Sclerosis Foundation 6520 North Andrews Ave   Fort Lauderdale FL 33309 888-673-6287 https://msfocus.org
Multiple Sclerosis National Multiple Sclerosis Society PO Box 4527   New York NY 10163 800-344-4867 https://www.nationalmssociety.org
Multiple Sclerosis National Multiple Sclerosis Society - Upstate NY 1000 Elmwood Ave Suite 900 Rochester NY 14620 585-271-0801 https://www.nationalmssociety.org/Chapters/NYR
Parkinson's Disease Parkinson's Foundation - NY 1359 Broadway Suite 1509 New York NY 10018 800-473-4636 https://www.parkinson.org/understanding-parkinsons

Heart-Vascular-related Resource Organizations

Heart American Heart Association 7272 Greenville Ave   Dallas  TX 75231 800-242-8721 https://www.heart.org
Heart American Heart Association - Rochester 25 Circle St Suite 102 Rochester NY 14607 585-371-3227 https://www.heart.org/en/affiliates/new-york/rochester
Heart Children's Heart Association  5 Revere Dr Suite 200 Lincolnshire IL 60069 847-634-6474 https://www.childrensheartfoundation.org/
Heart Pediatric Congenital Heart Association 14 Ellis Potter Court Suite 100 Madison  WI 63711 608-370-3739 http://conqueringchd.org/
Heart Transplant Strong Memorial Hospital Ambulatory Care - Cardiology 601 Elmwood Ave   Rochester NY 14642 585-273-3760 https://www.urmc.rochester.edu/transplant/heart.aspx
Stroke American Stroke Association 7272 Greenville Ave   Dallas  TX 75231 800-242-8721 https://www.heart.org
Vascular Disorders Vascular Cures 274 Redwood Shores Pkwy #717 Redwood City CA 94065 650-368-6022 https://vascularcures.org/

Infectious Disease-related Resource Organizations

Heart American Heart Association 7272 Greenville Ave   Dallas  TX 75231 800-242-8721 https://www.heart.org
Heart American Heart Association - Rochester 25 Circle St Suite 102 Rochester NY 14607 585-371-3227 https://www.heart.org/en/affiliates/new-york/rochester
Heart Children's Heart Association  5 Revere Dr Suite 200 Lincolnshire IL 60069 847-634-6474 https://www.childrensheartfoundation.org/
Heart Pediatric Congenital Heart Association 14 Ellis Potter Court Suite 100 Madison  WI 63711 608-370-3739 http://conqueringchd.org/
Heart Transplant Strong Memorial Hospital Ambulatory Care - Cardiology 601 Elmwood Ave   Rochester NY 14642 585-273-3760 https://www.urmc.rochester.edu/transplant/heart.aspx
Stroke American Stroke Association 7272 Greenville Ave   Dallas  TX 75231 800-242-8721 https://www.heart.org
Vascular Disorders Vascular Cures 274 Redwood Shores Pkwy #717 Redwood City CA 94065 650-368-6022 https://vascularcures.org/

Kidney/Urinary Tract Disease-related Resource Organizations

Alport Syndrome Alport Syndrome Foundation PO Box 4130   Scottsdale AZ 85261 480-800-3510 https://www.alportsyndrome.org
General American Association of Kidney Patients 14440 Bruce Downs Blvd   Tampa FL 33613 800-749-2257 https://aakp.org
General American Kidney Fund 11921 Rockville Pike Suite 300 Rockville  MD 20852 800-638-8299 http://www.akfinc.org
Transplant American Society for Artifical Internal Organs 7700 Congress Ave Suite 3107 Boca Raton FL 33487 561-999-8969 https://asaio.com
Transplant American Society of Transplantation 1120 Route 73 Suite 200 Mt Laurel NJ 08054 856-439-9986 https://www.myast.org
Dialysis Dialysis Patient Citizens 1012 14th St NW Suite 1475 Washington DC 20005 866-877-4242 http://www.dialysispatients.org
General National Kidney Foundation 30 East 33rd St   New York NY 10016 800-622-9010 https://www.kidney.org
Polycystic Kidney Polycystic Kidney Research Foundation 1001 E 101st Terrace Suite 220 Kansas City MO 64131 800-753-2873 https://pkdcure.org
General Renal Support Network 1146 N. Central Ave #121 Glendale CA 92102 818-543-0896  
Dialysis Center Rochester Regional Health - Seneca Ridge 370 Ridge Road East   Rochester NY 14621 585-922-0300 https://www.rochesterregional.org/locations?service=Dialysis&q&sortBy=relevance&sortOrder=asc&page=1
Dialysis Center Rochester Regional Health - Bay Creek 2010 Empire Blvd   Webster NY 14580 585-922-0300 https://www.rochesterregional.org/locations?service=Dialysis&q&sortBy=relevance&sortOrder=asc&page=1
Dialysis Center Rochester Regional Health - Spencerport 4 Land Re Way   Spencerport NY 14559 585-368-6610 https://www.rochesterregional.org/locations?service=Dialysis&q&sortBy=relevance&sortOrder=asc&page=1
Dialysis Center McCormick Transitional Care Center 1555 Long Pond Road   Rochester NY 14626 585-368-6565 https://www.rochesterregional.org/locations?service=Dialysis&q&sortBy=relevance&sortOrder=asc&page=1
Dialysis Center Andrew J. Kirch Dialysis Center  - Park Ridge 1555 Long Pond Road   Rochester NY 14626 585-723-7760 https://www.rochesterregional.org/locations?service=Dialysis&q&sortBy=relevance&sortOrder=asc&page=1
Dialysis Center Andrew J. Kirch Dialysis Center  - St Mary's 89 Genesee St   Rochester NY 14611 585-368-3934 https://www.rochesterregional.org/locations?service=Dialysis&q&sortBy=relevance&sortOrder=asc&page=1
Dialysis Center Rochester Regional Health - Chili 3379 Chili Ave   Rochester NY 14559 585-723-7000 https://www.rochesterregional.org/locations?service=Dialysis&q&sortBy=relevance&sortOrder=asc&page=1
Dialysis Center Fresenius - Clinton Crossings (Univ of Rochester) 2400 South Clinton Ave Bldg F Rochester NY 14618 585-461-0770 https://www.freseniuskidneycare.com/dialysis-centers/new-york/2912
Dialysis Center Strong Health Dialysis - Noyes 4616 Millennium Dr   Geneseo  NY 14454 585-991-5015 https://www.urmc.rochester.edu/noyes/healthcare-services/dialysis-center.aspx
Dialysis Center Fresenius - Freedom Center 100 Meridian Centre Blvd Suite 130 Rochester NY 14618 585-241-9783 https://www.freseniuskidneycare.com/dialysis-centers/new-york/9254
Dialysis Center Fresenius - Monroe Community 435 E. Henrietta Rd   Rochester NY 14620 585-292-0076 https://www.freseniuskidneycare.com/dialysis-centers/new-york/6073
Dialysis Center Fresenius - Strong Memorial Hemo Program 1208 Scottsville Rd   Rochester NY 14624 585-235-4336 https://www.freseniuskidneycare.com/dialysis-centers/new-york/2916
Dialysis Center Rochester Regional Health - Home Dialysis Center 370 E. Ridge Rd Suite 30  Rochester NY 14621 585-922-0339 https://www.rochesterregional.org/services/dialysis/home-dialysis
Dialysis Center Strong Memorial Hospital Ambulatory Care - Nephrology 601 Elmwood Ave   Rochester NY 14642 585-275-4517 https://www.urmc.rochester.edu/medicine/nephrology/patient-care/treatments-procedures/dialysis.aspx
Kidney Transplant Strong Memorial Hospital Ambulatory Care - Nephrology 601 Elmwood Ave   Rochester NY 14642 585-275-7753 https://www.urmc.rochester.edu/transplant/kidney.aspx

Mental Health/Addiction-related Organizations

ADD  Attention Deficit Disorder Association PO Box 103   Denver PA 17517 800-939-1019 https://add.org/
Addiction Association for Addiction Professionals 44 Canal Center Plaza Suite 301 Alexandria VA 22314 800-585-0497 https://www.naadac.org/
Alcohol/Substance Abuse Canandaigua Behavioral Health 35 North St   Canandaigua NY 14424 585-922-9900 https://www.rochesterregional.org/locations/canandaigua/canandaigua-behavioral-health-clinic
Alcohol/Substance Abuse Canandaigua VA Medical Center 400 Fort Hill Ave Bldg 9 Canandaigua NY 14424 585-394-2000 https://www.canandaigua.va.gov/services/Substance_Abuse.asp
Alcohol/Substance Abuse Clifton Springs Behavioral Health  2 Coulter Rd   Clifton Springs NY 14432 585-922-9900 https://www.rochesterregional.org/locations/clifton-springs/clifton-springs-behavioral-health-clinic
Alcohol/Substance Abuse Council on Alcoholism & Addictions of the Finger Lakes - Ontario 620 W. Washington St   Geneva NY 14456 315-789-0310 https://councilonalcoholismfingerlakes.org/
Alcohol/Substance Abuse Council on Alcoholism & Addictions of the Finger Lakes - Schuyler 106 South Perry St   Watkins Glen NY 14891 607-535-8264 https://councilonalcoholismfingerlakes.org/
Alcohol/Substance Abuse Council on Alcoholism & Addictions of the Finger Lakes - Seneca 111 Falls St   Seneca Falls  NY 13148 315-568-1890 https://councilonalcoholismfingerlakes.org/
Alcohol/Substance Abuse Council on Alcoholism & Addictions of the Finger Lakes - Wayne 12 Williams St   Lyons NY 14489 315-871-4006 https://councilonalcoholismfingerlakes.org/
Alcohol/Substance Abuse Council on Alcoholism & Addictions of the Finger Lakes - Yates 112 Main St   Penn Yan NY 14527 315-536-2435 https://councilonalcoholismfingerlakes.org/
Alcohol/Substance Abuse East Ridge Road Behavioral Health 490 East Ridge Rd   Rochester NY 14621 585-922-2500 https://www.rochesterregional.org/locations/rochester/rochester-behavioral-health-network
Alcohol/Substance Abuse Evelyn Brandon Chemical Dependency Clinic 81 Lake Ave   Rochester NY 14606 585-922-9900 https://www.rochesterregional.org/locations/rochester/evelyn-brandon-health-center-chemical-dependency-clinic
Alcohol/Substance Abuse Genesee Behavioral Health Center 224 Alexander St   Rochester NY 14607 585-922-9900 https://www.rochesterregional.org/locations/rochester/genesee-mental-health-center-gmhc-child-clinic
Alcohol/Substance Abuse Genesee/Orleans Council on Alcoholism & Substance Abuse 430 East Main St   Batavia NY 14020 585-343-1124 https://gcasa.net/
Alcohol/Substance Abuse Greece Behavioral Health Center - Outpatient Chemical Dependency 1565 Long Pond Rd   Rochester NY 14624 585-922-9900 https://www.rochesterregional.org/locations/greece/greece-chemical-dependency-clinic
Alcohol/Substance Abuse Hope Haven Center 16 Bank St 2nd Floor Batavia NY 14020 585-344-5396 https://www.rochesterregional.org/locations/batavia/hope-haven-center
Alcohol/Substance Abuse John L Norris Addiction Treatment Center 1732 South Ave   Rochester NY 14620 585-461-0410 https://www.monroecounty.gov/health_providers/
Alcohol/Substance Abuse National Council on Alcoholism & Drug Dependence 217 Broadway Suite 712 New York NY 10057 212-269-7797  
Alcohol/Substance Abuse National Council on Alcoholism & Drug Dependence - Rochester 1931 Buffalo Rd   Rochester NY 14624 585-719-3481 https://ncadd-ra.org/
Alcohol/Substance Abuse NYS Office of Alcoholism & Substance Abuse Services 1450 Western Ave   Albany NY 12203 518-457-8299 https://oasas.ny.gov/
Alcohol/Substance Abuse Outreach Community Center 447 Genesee At   Rochester NY 14606 585-328-0887 http://www.outreachcommunitycenter.com
Alcohol/Substance Abuse Pathways - Rochester 435 E. Henrietta Rd   Rochester NY 14620 585-424-6580 https://www.chsbuffalo.org/locations/pathways-rochester
Alcohol/Substance Abuse Rochester Calkins VA Clinic 260 Calkins Rd   Rochester NY 14623 585-463-2600 https://www.va.gov/directory/guide/facility.asp?ID=24
Alcohol/Substance Abuse Rochester Westfall VA Clinic 465 Westfall Rd   Rochester NY 14620 585-463-2600 https://www.va.gov/find-locations/facility/vha_528GE
Alcohol/Substance Abuse Strong Recovery Outpatient Chemical Dependency Services 601 Elmwood Ave   Rochester NY 14627 585-275-5400 https://www.urmc.rochester.edu/mental-health-wellness/addiction-services.aspx
Alcohol/Substance Abuse Unity Walk-In-Care Center 89 Genesee St   Rochester NY 14611 585-368-3050 https://www.rochesterregional.org/locations/rochester/unity-walkin-care-center
Alcohol-Related Alcoholics Anonymous  475 Riverside Dr   11th Floor New York NY 10115 212-870-3400 https://www.aa.org/
Alcohol-Related Alcoholics Anonymous - Rochester 1000 Elmwood Ave   Rochester NY 14620 585-232-6720 https://www.rochester-ny-aa.org/
Alcohol-Related Alcoholics Anonymous of the Finger Lakes PO Box 707   Geneva NY 14456 315-789-5955 http://fingerlakesaa.org/
Alcohol-Related Foundation for Alcohol Research 1200-C Agora Dr   Bel Air MD 21401 800-688-7152 https://www.abmrf.org/
Anxiety/Depression Anxiety & Depression Association of America 8701 Georgia Ave Suite 412 Silver Spring MD 20910 240-485-1001 https://adaa.org
Bipolar International Bipolar Foundation 8775 Aero Dr Suite 330 San Diego CA 92123 858-598-5967 http://ibpf.org/
Child/Adolescent American Association of Child & Adolescent Psychiatry 3615 Wisconsin Ave NW   Washington DC 20016 202-966-7300 https://www.aacap.org
Child/Adolescent University of Rochester Outpatient Mental Health - child/adolescent 601 Elmwood Ave   Rochester NY 14627 585-279-7800 https://www.urmc.rochester.edu/mental-health-wellness/child-adolescent-services.aspx
Eating Disorders National Eating Disorders Association 1500 Broadway Suite 1101 New York NY 10036 800-931-2237 https://www.nationaleatingdisorders.org
General Brain & Behavior Research Foundation 747 Third Ave  33rd floor New York NY 10017 800-829-8289 https://www.bbrfoundation.org
PTSD Post-Traumatic Stress Syndrome Foundation of America 9724 Derrington Rd   Houston TX 77064 877-717-7873 https://ptsdusa.org
Schizophrenia Schizophrenia & Related Disorders Alliance of America 2308 Mount Vernon Ave Suite 207 Alexandria  VA 22301 800-493-2094 https://sardaa.org
Variable Services DePaul 1931 Buffalo Rd   Rochester NY 14624 585-426-8000 https://www.depaul.org/
Variable Services University of Rochester Outpatient Mental Health Services - adult 601 Elmwood Ave   Rochester NY 14627 585-273-5050 https://www.urmc.rochester.edu/mental-health-wellness/adult-services/outpatient.aspx

Other Medical Problem-related Organizations

LGBT Health National Coalition for LGBT Health 2000 South St NW   Washington DC 20009 202-232-6749 https://healthlgbt.org/
LGBT Health Rochester PFLAG           585-993-3297 https://rochesterpflag.wixsite.com/rochester-pflag
LGBT Health PFLAG 1828 L St NW Suite 660 Washington DC 20036 202-467-8180 https://pflag.org/
Lung/Respiratory American Lung Association 55 W.Wacker Dr Suite 1150 Chicago IL 60601 800-586-4872 https://www.lung.org 
Lung/Respiratory American Lung Association - Rochester 1595 Elmwood Ave   Rochester NY 14620 585-442-4260 https://www.lung.org/local-content/_content-items/about-us/local-associations-office/New-York-Rochester.html
Lung/Respiratory American Thoracic Society 25 Broadway   New York NY 10004 212-315-8600 www.thoracic.org
Lung/Respiratory COPD Foundation 3300 Ponce de Leon Blvd   Miami FL 33134 866-731-2673 https://www.copdfoundation.org/
Lung/Respiratory Pulmonary Fibrosis Foundation 230 East Ohio St Suite 500 Chicago IL 60611 888-733-6741 https://www.pulmonaryfibrosis.org 
Musculoskeletal Arthritis Foundation 1355 Peachtree St NE Suite 600 Atlanta GA 30309 404-872-7100 https://www.arthritis.org/
Musculoskeletal Fibrous Dysplasia Foundation 2885 Sanford Ave SW #40754 Grandville MI 49418 855-742-8179 https://fibrousdysplasia.org/
Musculoskeletal Musculoskeletal Transplant Foundation 125 May St   Edison  NJ 08837 800-946-9008 https://www.mtfbiologics.org/
Musculoskeletal National Bone Health Alliance 251 18th St Suite 630 Arlington VA 22202 855-742-8179 http://www.nbha.org/
Musculoskeletal National Institute of Arthritis & Musculoskeletal & Skin Diseases 9000 Rockville Pike   Bethesda  MD 20892 877-226-4267 https://www.niams.nih.gov
Musculoskeletal National Osteoporosis Foundation 251 18th  St South Suite 630 Arlington VA 22202 800-231-4222 https://www.nof.org/
Musculoskeletal Osteogenesis Imperfecta Foundation 804 W. Diamond Ave Suite 210 Gaithersburg MD 20878 301-947-0083 www.oif.org

 

 

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